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Cover image of the book Universal Coverage of Long-Term Care in the United States
Books

Universal Coverage of Long-Term Care in the United States

Can We Get There from Here?
Editors
Douglas Wolf
Nancy Folbre
Ebook
$10.00
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Publication Date
340 pages
ISBN
978-1-61044-799-7
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1
Introduction
Douglas Wolf
In this overview of the volume, Wolf outlines recent developments in long-term care policy and how research can help lead to a truly universal long-term care system in America.
2
Long-Term Care and Long-Term Family Caregivers: Outdated Assumptions, Future Opportunities
Carol Levine
Blending insights from her personal life and policy analysis, Carol Levine asks: How can public policy best support long-term family care?
3
The Rise and Fall of the Class Act: What Lessons Can We Learn?
Howard Gleckman
In an engaging history of the CLASS Act, Howard Gleckman examines why the landmark legislation failed and if it can be improved.
4
The CLASS Promise in the Context of American Long-Term Care Policy
Robert Hudson
Robert Hudson looks at the history of long-term care policy in America and why the issue has remained only marginally acknowledged or addressed.
5
Free Personal Care in Scotland, (Almost) 10 Years On
David Bell and Alison Bowes
After reviewing recent policy shifts in the United Kingdom, David Bell and Alison Bowes describe the costs and benefits of the provision of free personal care in Scotland.
6
Population Aging and Long-Term Care: The Scandinavian Case
Svein Olav Daatland
Svein Olav Daatland analyzes the Scandinavian approach to long-term care, with a particular emphasis on the Norwegian model.
7
Lessons on Long-Term Care from Germany and Japan
Mary Jo Gibson
Germany and Japan have both implemented mandatory social insurance programs to help provide long-term care. Mary Jo Gibson provides an in-depth analysis, along with possible lessons for American policymakers.
8
The Long-Term Care Workforce: From Accidental to Valued Profession
Robyn Stone
In her overview of the formal, paid long-term care workforce, Robyn I. Stone discusses current challenges and potential solutions to increase supply and quality.
9
The Perverse Public and Private Finances of Long-Term Care
Leonard Burman
How do Americans pay for long-term care? Leonard Burman explains the long-term care financing system, which he calls "dysfunctional."
10
It Takes Two to Tango: A Perspective on Public and Private Coverage for Long-Term Care
David Stevenson, Marc A. Cohen, Brian Burwell, and Eileen J. Tell
David Stevenson, Marc A. Cohen, Brian Burwell and Eileen J. Tell look at the private long-term care insurance market and ask: Why don’t more Americans purchase such insurance?
11
Long-Term Care Coverage for All: Getting There from Here
Nancy Folbre and Douglas Wolf
Editors Nancy Folbre and Douglas Wolf conclude the volume by discussing potential pathways to more comprehensive long-term care insurance.

As millions of baby boomers retire and age in the coming years, more American families will confront difficult choices about the long-term care of their loved ones. The swelling ranks of the disabled and elderly who need such support—including home care, adult day care, or a nursing home stay—must often interact with a strained, inequitable and expensive system. How will American society and policy adapt to this demographic transition?

In Universal Coverage of Long-Term Care in the United States, editors Nancy Folbre and Douglas Wolf and an acclaimed group of care researchers offers a much-needed assessment of current U.S. long-term care policies, the problems facing more comprehensive reform, and what can be learned from other countries facing similar care demands. After the high-profile suspension of the Obama Administration’s public long-term insurance program in 2011, this volume, the Foundation’s first free e-book, includes concrete suggestions for moving policy toward a more affordable and universal long-term care coverage in America.

Contributors

David Bell is a Professor of Economics in the Stirling Management School at the University of Stirling, Stirling, Scotland.

Alison Bowes is a Professor in the School of Applied Social Science at the University of Stirling, Stirling, Scotland.

Leonard Burman is the Daniel P. Moynihan Professor of Public Affairs in the Maxwell School of Citizenship and Public Affairs of Syracuse University, Syracuse, New York.

Brian Burwell is Vice President for Community Living Systems at Thomson Reuters, Cambridge, Massachusetts.

Marc A. Cohen is Chief Research and Development Officer of LifePlans, Inc., in Waltham, Massachusetts.

Svein Olav Daatland is Senior Researcher at NOVA/Norwegian Social Research, in Oslo, Norway.

Nancy Folbre is a Professor of Economics at the University of Massachusetts at Amherst.

Mary Jo Gibson, formerly a Strategic Policy Adviser at AARP's Public Policy Institute, is a long-term care consultant.

Howard Gleckman is a Resident Fellow at The Urban Institute, where he is affiliated with both the Tax Policy Center and the Program on Retirement Policy. 

Robert Hudson is Professor and Chair of Social Welfare Policy in Boston University’s School of Social Work.

Carol Levine is Director of the Families and Health Project at the United Hospital Fund, New York City.

David Stevenson is an Associate Professor of Health Policy in the Department of Health Care Policy at Harvard Medical School.

Robyn Stone is Executive Director of the Center for Applied Research and Senior Vice President of LeadingAge in Washington, D.C.

Eileen J. Tell is Senior Vice President of Univita (formerly the Long Term Care Group, Inc.), in Natick, Massachusetts.

Douglas Wolf is the Gerald B. Cramer Professor of Aging Studies and Director of the Center for Aging and Policy Studies at Syracuse

Universal Long Term Care Fact Sheet

Author Interviews

Robyn I. Stone discusses the long-term care workforce in America, its challenges and potential reforms for improvement. Read the Interview

Carol Levine discusses her personal experience as a family caregiver, and how policy must change to better support friends and family who offer unpaid care. Read the Interview

Douglas Wolf offers an overview of Universal Coverage and outlines possible reforms to improve the provision of long-term care in America. Read the Interview

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Cover image of the book Unequal Time
Books

Unequal Time

Gender, Class, and Family in Employment Schedules
Authors
Dan Clawson
Naomi Gerstel
Paperback
$45.00
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6 in. × 9 in. 340 pages
ISBN
978-0-87154-014-0
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Winner of the 2015 Max Weber Award from the Organizations, Occupations, and Work Section of the American Sociological Association

Winner of the 2015 William T. Goode Distinguished Book Award from the Family Section of the American Sociological Association

Winner of the 2015 Distinguished Scholarly Book Award from the Labor and Labor Movements Section of the American Sociological Association

“How long is the workday, and how thick the paycheck? To these questions, scholars have offered answers. But the key questions, Dan Clawson and Naomi Gerstel propose in this fascinating book, are: how shielded are we from unpredictable demands? And how do we control the unpredictability we’re made to face? Comparing doctors, nurses, EMTs and nursing assistants, men and women, the authors explore the lives of the ‘haves’ and ‘have-nots’ of such control, as well as the friends, co-workers and family on whom they call to create orderly lives in an increasingly disorderly world. A thought-provoking and very important read.”

—Arlie Hochschild, professor emerita, University of California, Berkeley

Unequal Time is a meticulously and creatively researched study of how time at home and work is understood and managed. Time is not only an individual possession, but is relational. ‘Normal unpredictability’ rules. Dan Clawson and Naomi Gerstel explore the gaps between the rhetoric and realities of workplace flexibility. They find that flexibility is not just a matter of choice, but power.”

—Robert Aronowitz, M.D., professor and chair, History and Sociology of Science,
University of Pennsylvania

“Dan Clawson and Naomi Gerstel provide a powerful account of how inequalities are at the core of many of the vexing problems of work and family. Based on in-depth multi-method research in the health care industry, and this compelling book will change the way you think about work time issues. Essential reading for scholars and practitioners alike.”

—Juliet Schor, professor of sociology, Boston College

“This book's careful research design pays enormous dividends: comparing four critical occupations in the health care sector, Dan Clawson and Naomi Gerstel generate important new insights into the ways class and gender inequalities interact to shape struggles for control over working time. Unequal Time demonstrates that gender and class advantage and disadvantage are deeply implicated in the dynamics of ‘work-family balance’ and ‘flexibility,’ complicating the conventional wisdom in a provocative and fruitful way. This book is indispensable for scholars, policymakers, and anyone who cares about working families.”

 —Ruth Milkman, professor of sociology, The Graduate Center, CUNY

Life is routinely unpredictable. Control over one's time is a critical resource for managing that unpredictability, keeping a job, and raising a family. But the ability to control one's time, much like one's income, is determined to a significant degree by both gender and class. In Unequal Time, sociologists Dan Clawson and Naomi Gerstel explore the ways in which social inequalities permeate the workplace, reverberating through a web of time in which the schedules of one person shape the schedules of others in ways that exemplify and often exacerbate differences between men and women, the privileged and disadvantaged.

Unequal Time investigates the connected schedules of four health sector occupations: professional doctors and nurses, and working-class EMTs and nursing assistants. While the work-family literature mostly examines the hours people work, Clawson and Gerstel delve into the process through which schedules are set, negotiated, and contested. They show how workers in all four occupations experience the effects of schedule uncertainty but do so in distinct ways, largely shaped by the intersection of gender and class. Doctors, who are largely male and professional, have significant control over their schedules, though they often claim otherwise, and tend to work long hours because they earn respect from their peers for doing so. By contrast, nursing assistants, primarily female and working-class, work demanding hours because they face penalties for taking time off, no matter how valid the reasons. Without institutional support, they often turn to co-workers to help create more orderly lives.

Unequal Time shows that the degree of control that workers hold over their schedules can either reinforce or challenge conventional gender roles. When male doctors work overtime, they often rely on their wives and domestic workers to care for their families. Female nurses are more likely to handle the bulk of their family responsibilities, and use the control they have over their work schedules to dedicate more time to home life. Surprisingly, the authors find that in the working class occupations, workers frequently undermine traditional gender roles. Male EMTs often take significant time off for child care, and female nursing assistants sometimes choose to work more hours to provide extra financial support for their families. Employers often underscore these disparities by allowing their upper-tier workers the flexibility that enables their gender roles at home, while low-wage workers are pressured to put their jobs before any unpredictable events they might face outside of work.

We tend to consider personal and work scheduling an individual affair, but Clawson and Gerstel put forward the provocative hypothesis that time in the workplace is both collective and highly unequal. A valuable resource for workers' advocates and policymakers alike, Unequal Time illustrates how social inequalities in the workplace shape the lives of workers and their families.

DAN CLAWSON is professor of sociology at the University of Massachusetts, Amherst.

NAOMI GERSTEL is a distinguished university professor of sociology at the University of Massachusetts, Amherst.

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Cover image of the book Spheres of Influence
Books

Spheres of Influence

The Social Ecology of Racial and Class Inequality
Authors
Douglas S. Massey
Stefanie Brodmann
Paperback
$59.95
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6 in. × 9 in. 376 pages
ISBN
978-0-87154-643-2
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“Douglas Massey and Stefanie Brodmann provide an ambitious and rigorous examination of how inequality exerts its influence in the lives of young Americans. Analyzing a national longitudinal study and focusing on multiple social contexts—including school, religion, peers, and neighborhoods—the authors discover important new facts and evaluate competing explanations for a diverse set of outcomes. Whether about depression, crime, sexual behavior, obesity, drinking, or human capital attainment, the results are fascinating. Spheres of Influence should be required reading for social scientists and policymakers seeking comprehensive knowledge on the social ecology of class and race inequality.”

—Robert J. Sampson,  Henry Ford II Professor of the Social Sciences, Harvard University

Spheres of Influence is a pathbreaking book exposing the vast complexities in how race and class intersect in affecting development and well-being as people move from adolescence into adulthood in the United States. The comprehensiveness of the theory and findings about the ways that highly diverse social ecologies of family, school, neighborhood, peers, and religion set the stage for vast inequalities in social outcomes is unparalleled.”

 

—Lauren J. Krivo, professor of sociology and criminal Justice, Rutgers University

The black-white divide has long haunted the United States as a driving force behind social inequality. Yet, the civil rights movement, the increase in immigration, and the restructuring of the economy in favor of the rich over the last several decades have begun to alter the contours of inequality. Spheres of Influence, co-authored by noted social scientists Douglas S. Massey and Stefanie Brodmann, presents a rigorous new study of the intersections of racial and class disparities today. Massey and Brodmann argue that despite the persistence of potent racial inequality, class effects are drastically transforming social stratification in America.

This data-intensive volume examines the differences in access to material, symbolic, and emotional resources across major racial groups. The authors find that the effects of racial inequality are exacerbated by the class differences within racial groups. For example, when measuring family incomes solely according to race, Massey and Brodmann found that black families’ average income measured $28,400, compared to Hispanic families’ $35,200. But this gap was amplified significantly when class differences within each group were taken into account. With class factored in, inequality across blacks’ and Hispanics’ family incomes increased by a factor of almost four, with lower class black families earning an average income of only $9,300 compared to $97,000 for upper class Hispanics. Massey and Brodmann found similar interactions between class and racial effects on the distribution of symbolic resources, such as occupational status, and emotional resources, such as the presence of a biological father—across racial groups. Although there are racial differences in each group’s access to these resources, like income, these disparities are even more pronounced once class is factored in.

The complex interactions between race and class are apparent in other social spheres, such as health and education. In looking at health disparities across groups, Massey and Brodmann observed no single class effect on the propensity to smoke cigarettes. Among whites, cigarette smoking declined with rising class standing, whereas among Hispanics it increased as class rose. Among Asians and blacks, there was no class difference at all. Similarly, the authors found no single effect of race alone on health: Health differences between whites, Asians, Hispanics, and blacks were small and non-significant in the upper class, but among those in the lower class, intergroup differences were pronounced.

As Massey and Brodmann show, in the United States, a growing kaleidoscope of race-class interactions has replaced pure racial and class disadvantages. By advancing an ecological model of human development that considers the dynamics of race and class across multiple social spheres, Spheres of Influence sheds important light on the factors that are currently driving inequality today.

DOUGLAS S. MASSEY is Henry G. Bryant Professor of Sociology and Public Affairs at the Woodrow Wilson School.

STEFANIE BRODMANN is an economist at the Social Protection and Labor Unit of the World Bank.

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Cover image of the book Experimentation with Human Beings
Books

Experimentation with Human Beings

The Authority of the Investigator, Subject, Profession, and State in the Human Experimentation Process
Authors
Jay Katz
Alexander Morgan Capron
Eleanor Swift Glass
Hardcover
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7.75 in. × 10.25 in. 1208 pages
ISBN
978-0-87154-438-4
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In recent years, increasing concern has been voiced about the nature and extent of human experimentation and its impact on the investigator, subject, science, and society. This casebook represents the first attempt to provide comprehensive materials for studying the human experimentation process.

Through case studies from medicine, biology, psychology, sociology, and law—as well as evaluative materials from many other disciplines—Dr. Katz examines the problems raised by human experimentation from the vantage points of each of its major participants—investigator, subject, professions, and state. He analyzes what kinds of authority should be delegated to these participants in the formulation, administration, and review of the human experimentation process. Alternative proposals, from allowing investigators a completely free hand to imposing centralized governmental control, are examined from both theoretical and practical perspectives.

The conceptual framework of Experimentation with Human Beings is designed to facilitate not only the analysis of such concepts as “harm,” “benefit,” and “informed consent,” but also the exploration of the problems raised by man’s quest for knowledge and mastery, his willingness to risk human life, and his readiness to delegate authority to professionals and rely on their judgment.

JAY KATZ is the Elizabeth K. Dollard Professor Emeritus of Law, Medicine, and Psychoanalysis at the Yale Law School.

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Cover image of the book Health Care and Gender
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Health Care and Gender

Author
Charlotte Muller
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$26.95
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272 pages
ISBN
978-0-87154-611-1
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Health and medical services should meet individuals’ needs regardless of gender, but in both subtle and overt ways this is very often not the case. Gender biases result not only in flawed access to care but also in insufficient medical research, uninformed diagnoses, and gaps in covering critical needs.

In Health Care and Gender, Charlotte Muller provides a contemporary assessment of the forces that sustain gender biases in the health and medical professions. Beginning with an analysis of gender comparisons in health care usage and adequacy of treatment, Muller discusses the experiences of many different women: working women with insurance coverage, the poor dependent on Medicaid, and the elderly. She also focuses on the issues facing women of reproductive age and shows how poverty or extremely volatile political and ethical controversy may impede their search for basic maternity and family planning services.

Drawing on a large body of evidence from medical, health, and behavioral literature and from national statistics, Health Care and Gender probes a timely and crucial topic. For scholars, analysts, and policy makers interested in women’s studies, health and medical care, gerontology, consumer and labor economics, and social justice. Muller’s thorough analysis looks to the future by presenting agendas for reform, research, and evaluation.

CHARLOTTE F. MULLER is director of the Divisions of Health Economics, Department of Community Medicine, and the professor in the Ritter Department of Geriatrics and Adult Medicine at the Mount Sinai School of Medicine.

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Cover image of the book The Biological Consequences of Socioeconomic Inequalities
Books

The Biological Consequences of Socioeconomic Inequalities

Editors
Barbara Wolfe
William N. Evans
Teresa E. Seeman
Paperback
$52.50
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6 in. × 9 in. 292 pages
ISBN
978-0-87154-892-4
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Social scientists have repeatedly uncovered a disturbing feature of economic inequality: people with larger incomes and better education tend to lead longer, healthier lives. This pattern holds across all ages and for virtually all measures of health, apparently indicating a biological dimension of inequality. But scholars have only begun to understand the complex mechanisms that drive this disparity. How exactly do financial well-being and human physiology interact? The Biological Consequences of Socioeconomic Inequalities incorporates insights from the social and biological sciences to quantify the biology of disadvantage and to assess how poverty gets under the skin to impact health.

Drawing from unusually rich datasets of biomarkers, brain scans, and socioeconomic measures, Biological Consequences of Socioeconomic Inequalities illustrates exciting new paths to understanding social inequalities in health. Barbara Wolfe, William N. Evans and Nancy Adler begin the volume with a critical evaluation of the literature on income and health, providing a lucid review of the difficulties of establishing clear causal pathways between the two variables. In their chapter, Arun S. Karlamangla, Tara L. Gruenewald, and Teresa E. Seeman outline the potential of biomarkers—such as cholesterol, heart pressure, and C-reactive protein—to assess and indicate the factors underlying health. Edith Chen, Hannah M. C. Schreier, and Meanne Chan reveal the empirical power of biomarkers by examining asthma, a condition steeply correlated with socioeconomic status. Their analysis shows how stress at the individual, family, and neighborhood levels can increase the incidence of asthma. The volume then turns to cognitive neuroscience, using biomarkers in a new way to examine the impact of poverty on brain development. Jamie Hanson, Nicole Hair, Amitabh Chandra, Ed Moss, Jay Bhattacharya, Seth D. Pollack, and Barbara Wolfe use a longitudinal Magnetic Resonance Imaging (MRI) study of children between the ages of four and eighteen to study the link between poverty and limited cognition among children. Michelle C. Carlson, Christopher L. Seplaki, and Teresa E. Seeman also focus on brain development to examine the role of socioeconomic status in cognitive decline among older adults.

Featuring insights from the biological and social sciences, Biological Consequences of Socioeconomic Inequalities will be an essential resource for scholars interested in socioeconomic disparities and the biological imprint that material deprivation leaves on the human body.

BARBARA WOLFE is professor of public affairs, economics, and population health sciences at the University of Wisconsin-Madison.

WILLIAM N. EVANS is Keough-Hesburge Professor of Economics in the Department of Economics at the University of Notre Dame.

TERESA E. SEEMAN is professor of medicine and epidemiology in the school of public health at the University of California, Los Angeles.

CONTRIBUTORS: Nancy Adler, Jay Bhattacharya, Michelle C. Carlson, Meanne Chan, Amitabh Chandra, Edith Chen, William H. Dow, William Evans, Elliot Friedman, Tara L. Gruenewald, Daniel A. Hackman, Nicole Hair, Jamie Hanson, Arun S. Karlamangla, Catarine Kiefe, Ed Moss, Seth D. Pollak, David H. Rehkopf, Hannah M. C. Schreier, Teresa E. Seeman, Christopher L. Seplaki, Barbara Wolfe

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Cover image of the book For Love and Money
Books

For Love and Money

Care Provision in the United States
Editor
Nancy Folbre
Paperback
$45.00
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6 in. × 9 in. 304 pages
ISBN
978-0-87154-353-0
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As women moved into the formal labor force in large numbers over the last forty years, care work – traditionally provided primarily by women – has increasingly shifted from the family arena to the market. Child care, elder care, care for the disabled, and home care now account for a growing segment of low-wage work in the United States, and demand for such work will only increase as the baby boom generation ages. But the expanding market provision of care has created new economic anxieties and raised pointed questions: Why do women continue to do most care work, both paid and unpaid? Why does care work remain low paid when the quality of care is so highly valued? How effective and equitable are public policies toward dependents in the United States? In For Love and Money, an interdisciplinary team of experts explores the theoretical dilemmas of care provision and provides an unprecedented empirical overview of the looming problems for the care sector in the United States.

Drawing on diverse disciplines and areas of expertise, For Love and Money develops an innovative framework to analyze existing care policies and suggest potential directions for care policy and future research. Contributors Paula England, Nancy Folbre, and Carrie Leana explore the range of motivations for caregiving, such as familial responsibility or limited job prospects, and why both love and money can be efficient motivators. They also examine why women tend to specialize in the provision of care, citing factors like job discrimination, social pressure, or the personal motivation to provide care reported by many women. Suzanne Bianchi, Nancy Folbre, and Douglas Wolf estimate how much unpaid care is being provided in the United States and show that low-income families rely more on unpaid family members for their child and for elder care than do affluent families. With low wages and little savings, these families often find it difficult to provide care and earn enough money to stay afloat. Candace Howes, Carrie Leana and Kristin Smith investigate the dynamics within the paid care sector and find problematic wages and working conditions, including high turnover, inadequate training and a “pay penalty” for workers who enter care jobs. These conditions have consequences: poor job quality in child care and adult care also leads to poor care quality. In their chapters, Janet Gornick, Candace Howes and Laura Braslow provide a systematic inventory of public policies that directly shape the provision of care for children or for adults who need personal assistance, such as family leave, child care tax credits and Medicaid-funded long-term care. They conclude that income and variations in states’ policies are the greatest factors determining how well, and for whom, the current system works. Despite the demand for care work, very little public policy attention has been devoted to it. Only three states, for example, have enacted paid family leave programs.

Paid or unpaid, care costs those who provide it. At the heart of For Love and Money is the understanding that the quality of care work in the United States matters not only for those who receive care but also for society at large, which benefits from the nurturance and maintenance of human capabilities. As care work gravitates from the family to the formal economy, this volume clarifies the pressing need for America to fundamentally rethink its care policies and increase public investment in this increasingly crucial sector.

NANCY FOLBRE is professor of economics at the University of Massachusetts, Amherst.

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Cover image of the book Family Consequences of Children's Disabilities
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Family Consequences of Children's Disabilities

Author
Dennis Hogan
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$37.50
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132 pages
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978-0-87154-457-5
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A Volume in the American Sociological Association’s Rose Series in Sociology

Winner of the 2012 Otis Dudley Duncan Award for Outstanding Scholarship in Social Demography

The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life.

The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty.

Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals.

Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding.

DENNIS HOGAN is Robert E. Turner Distinguished Professor of Population Studies at Brown University.

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Cover image of the book Shattering Culture
Books

Shattering Culture

American Medicine Responds to Cultural Diversity
Editors
Mary-Jo Delvecchio Good
Sarah S. Willen
Seth Donal Hannah
Ken Vickery
Lawrence Taeseng Park
Paperback
$47.50
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Publication Date
260 pages
ISBN
978-0-87154-060-7
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"Culture counts" has long been a rallying cry among health advocates and policymakers concerned with racial disparities in health care. A generation ago, the women’s health movement led to a host of changes that also benefited racial minorities, including more culturally aware medical staff, enhanced health education, and the mandated inclusion of women and minorities in federally funded research. Many health professionals would now agree that cultural competence is important in clinical settings, but in what ways? Shattering Culture provides an insightful view of medicine and psychiatry as they are practiced in today’s culturally diverse clinical settings. The book offers a compelling account of the many ways culture shapes how doctors conduct their practices and how patients feel about the care they receive.

Based on interviews with clinicians, health care staff, and patients, Shattering Culture shows the human face of health care in America. Building on over a decade of research led by Mary-Jo Good, the book delves into the cultural backgrounds of patients and their health care providers, as well as the institutional cultures of clinical settings, to illuminate how these many cultures interact and shape the quality of patient care. Sarah Willen explores the controversial practice of matching doctors and patients based on a shared race, ethnicity, or language and finds a spectrum of arguments challenging its usefulness, including patients who may fear being judged negatively by providers from the same culture. Seth Hannah introduces the concept of cultural environments of hyperdiversity describing complex cultural identities. Antonio Bullon and Mary-Jo Good demonstrate how regulations meant to standardize the caregiving process—such as the use of templates and check boxes instead of narrative notes—have steadily limited clinician flexibility, autonomy, and the time they can dedicate to caring for patients. Elizabeth Carpenter-Song looks at positive doctor-patient relationships in mental health care settings and finds that the most successful of these are based on mutual “recognition”—patients who can express their concerns and clinicians who validate them. In the book’s final essay, Hannah, Good, and Park show how navigating the maze of insurance regulations, financial arrangements, and paperwork compromises the effectiveness of mental health professionals seeking to provide quality care to minority and poor patients.

Rapidly increasing diversity on one hand and bureaucratic regulations on the other are two realities that have made providing culturally sensitive care even more challenging for doctors. Few opportunities exist to go inside the world of medical and mental health clinics and see how these realities are influencing patient care. Shattering Culture provides a rare look at the day-to-day experiences of psychiatrists and other clinicians and offers multiple perspectives on what culture means to doctors, staff, and patients and how it shapes the practice of medicine and psychiatry.

MARY-JO DELVECCHIO GOODis professor of social medicine at Harvard Medical School and teaches in the Department of Sociology at Harvard University, in addition to being a faculty affiliate of the Asia Center, the Center for Middle Eastern Studies, and the Weatherhead Center for International Affairs.

SARAH S. WILLEN is assistant professor of anthropology at the University of Connecticut.

SETH DONAL HANNAH is lecturer on sociology at Harvard University.

KEN VICKERY is director of external fellowships at the University of Illinois, Urbana-Champaign.

LAWRENCE TAESENG PARK assistant professor of psychiatry at Massachusetts General Hospital.

CONTRIBUTORS: Antonio Bullon, Joseph D. Calabrese,  Elizabeth Carpenter-Song,  Sadeq Rahimi, Lisa Stevenson, Marina Yaroshenko.  

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